The AARP Public Policy Institute has published a new Spotlight report entitled, "From Home Alone to the CARE Act: Collaboration for Family Caregivers". The article discusses the 2012 JAHF-funded Home Alone study and the subsequent Caregiver Advise, Record, and Enable (CARE) Act, which has been adopted in 39 states and territories to better support family caregivers of hospitalized patients.
The AARP Public Policy Institute (PPI) worked with the United Hospital Fund (UHF) to undertake Home Alone: Family Caregivers Providing Complex Chronic Care, the first national study of family caregivers to determine what types of medical/nursing tasks they perform and how frequently they perform them. That report broke new ground by uncovering that nearly half of family caregivers are performing complex medical/nursing tasks, often with little guidance or support. This led to the development and spread of the CARE Act and the Home Alone Alliance. The Alliance is a network of 15 members seeking to improve care for individuals supported by family caregivers and to create a national change in culture to better support those who are the very core of health and long-term services and supports - family caregivers.