NASEM Fourth Workshop on Quality of Life for Individuals with Dementia - Preventing Elder Abuse and Fostering Living Well After a Dementia Diagnosis
The National Academies of Science Engineering and Medicine (NASEM) Decadal Survey of Behavioral and Social Science Research on Alzheimer’s Disease and Alzheimer’s Disease-Related Dementias held its fourth public workshop on July 8 as part of a two-day meeting.
This fourth workshop featured two sessions incorporating the perspectives of researchers and individuals who have been directly affected by dementia.
The first session, "Elder Law and Preventing Fraud and Abuse of Individuals with Dementia" addressed the following topics:
- What do we know about the vulnerability of the population with dementia related to fraud and abuse? Does the age of the individual living with dementia affect available protections? What are the knowledge gaps?
- What policies exist to minimize fraud and abuse risk, and how has the effectiveness of those policies been assessed?
The second session, "Living Well with Dementia: Disease Trajectory, Retaining Cognitive Capacities, Maximizing Quality of Life, and Measurement Issues" covered the following topics:
- What do we know about the trajectory of Alzheimer's and other dementias, and what questions should be addressed?
- To what extent do health care providers reflect understanding about the trajectory of dementia in their interactions with patients with dementia, and how does this affect quality of life for these patients?
- What do we know about strategies for retaining cognitive capacities to the greatest extent possible following the onset of dementia symptoms?
- What do we know about strategies for sustaining engagement in hobbies and other leisure activities following the onset of dementia symptoms?
- What does high quality of life following a dementia diagnosis look like?
- How can we measure the subjective experience of individuals with dementia related to quality of life?
To view the agenda, click here.
To learn more about the workshop and to download the meeting materials, click here.
To learn more about NASEM's meeting #3 and the third public workshop on July 7, click here.
