Engaging Family Caregivers through Shared Access to the Electronic Health Record, Planning for Transformational Change

Grant Summary

The aim of this initiative is to enable family caregivers to more easily access the health information needed to coordinate and manage care of older adults, particularly those with complex health conditions. This planning grant addresses ways to increase family caregivers’ shared access to electronic health records of older adults in their care by developing strategic partnerships with expert leaders and organizations; creating educational materials and toolkits for patients, clinicians and administrative staff; and developing a proposal and evaluation plan for a health system-level demonstration project to be conducted in a next phase. Researchers at Johns Hopkins University will partner with and build on the OpenNotes movement, which promotes shared access to electronic health records through secure patient portals.

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Grant Details

Organization

Johns Hopkins University

Grant Amount

$364,656

Grant Period

18 months

Approval Date

December 2019

Priority Area

Family Caregiving

Status

Closed

Primary Contact

Jennifer Wolff
jwolff2@jhu.edu

Program Officer

Nancy Wexler

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