Engaging Family Caregivers through Shared Access to the Electronic Health Record

Grant Summary

This project implements a demonstration in three health systems to increase the uptake and use of shared electronic health record access by family caregivers of older adults, evaluate its effects and disseminate best practices to promote national adoption. Because millions of older adults manage their health with the help of family caregivers, it is imperative they have shared access to the electronic health record. This work builds on a planning grant with researchers at Johns Hopkins University and leaders of the OpenNotes movement at the Beth Israel Deaconess Medical Center.

Related Grant Resources

• Project Page: Open Notes - EHR Proxy Access for Family Care Partners
• Coalition for Care Partners Pilot Materials: Engaging Family Care Partners through Shared Access to the Electronic Health Record
• JMIR Paper: Co-Designing an Initiative to Increase Shared Access to Older Adults’ Patient Portals - Stakeholder Engagement
• Coalition for Care Partners Issue Brief: Connecting Care Partners Through Health Information Technology
• Coalition for Care Partners website
• OpenNotes Learning Collaborative: Proxy Access for Older Adults
• JMIR Aging Paper: Shared Access to Patient Portals for Older Adults - Implications for Privacy and Digital Health Equity
• Previous Phase: Engaging Family Caregivers through Shared Access to the Electronic Health Record, Planning for Transformational Change