Engaging Family Caregivers through Shared Access to the Electronic Health Record

Grant Summary

This project implements a demonstration in three health systems to increase the uptake and use of shared electronic health record access by family caregivers of older adults, evaluate its effects and disseminate best practices to promote national adoption. Because millions of older adults manage their health with the help of family caregivers, it is imperative they have shared access to the electronic health record. This work builds on a planning grant with researchers at Johns Hopkins University and leaders of the OpenNotes movement at the Beth Israel Deaconess Medical Center.

Related Grant Resources

• Project Page: Open Notes - EHR Proxy Access for Family Care Partners
• Coalition for Care Partners website
• Applied Clinical Infomatics Paper: Solutions for Increased Adoption of Patient Portal Shared Access: A Human-Centered Design Approach Using the Double Diamond Model
• 2025 Issue Brief: Shared Access to the Patient Portal
• Coalition for Care Partners Shared Access Toolkit: Clinicians & Health Systems
• Coalition for Care Partners Shared Access Toolkit: Patients & Care Partners
• Previous Phase: Engaging Family Caregivers through Shared Access to the Electronic Health Record, Planning for Transformational Change